No Longer Silent: Patient Access Stories
No Longer Silent: Patient Access Stories amplifies the voices of real patients navigating the murky waters of the American healthcare system. These harrowing stories expose the dire consequences of delayed care and suboptimal treatment, calling for reform to allow patients and physicians to choose the best treatment plans.
Episodes
![Getting Loud With Rosemary Blashill](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog18662065/Pod_Cover_-_Rosemary_Blashill9qams_300x300.jpeg)
4 days ago
Getting Loud With Rosemary Blashill
4 days ago
4 days ago
In this heartfelt episode, we sit down with Rosemary Blashill, her daughter Lisa Peacock, and her husband Tim. Rosemary, a retired nurse with over 50 years of service, shares the challenges she faces after losing her insurance and transitioning to a Medicare Advantage plan, which has resulted in exorbitant out-of-pocket costs for essential medications. Lisa, also a nurse, provides insight into the systemic issues that prevent patients like her mother from receiving necessary treatments. The conversation highlights the emotional and financial toll of inadequate healthcare policies and the power of family advocacy.
![Getting Loud With Dr. Le Ondra Clark Harvey](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog18662065/thumbnailcom9cu35_300x300.jpg)
Tuesday Jul 16, 2024
Getting Loud With Dr. Le Ondra Clark Harvey
Tuesday Jul 16, 2024
Tuesday Jul 16, 2024
In this vulnerable episode, Dr. Le Ondra Clark Harvey shares her deeply personal journey with breast cancer, from the initial shock and sadness to finding strength and purpose in spreading awareness. She recounts how she used humor and social media to cope, wearing funny t-shirts post-surgery to spark conversations. Dr. Clark Harvey also delves into the emotional challenges, including her struggles with her scars and feelings of guilt for not undergoing chemotherapy or radiation like her mother and aunt. Through raw photography and public sharing, she found healing and aimed to break the stigma around breast cancer, especially within the African-American community.
Editors Note: Dr. Clark Harvey is a psychologist, not a psychiatrist as stated in the intro.
![Getting Loud With Jess Isomoto](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog18662065/IG_SIZE_Carousel_3_-_Jessica_Ismoto8gdiq_300x300.jpg)
Tuesday Jul 09, 2024
Getting Loud With Jess Isomoto
Tuesday Jul 09, 2024
Tuesday Jul 09, 2024
In this inspiring episode, Jess Isomoto, a stage 3 breast cancer survivor, shares her journey from diagnosis to advocacy. Diagnosed with invasive ductal carcinoma in February 2020, Jess discusses the challenges she faced accessing care, especially as an Asian American woman during the COVID-19 pandemic. She highlights the importance of patient advocacy, the need for better representation and support for communities of color, and the systemic issues in healthcare that often leave patients feeling unseen and unheard. Jess's story is a powerful reminder of the resilience and strength required to navigate cancer and the critical need for equity in healthcare.
![Getting Loud With Rev. Tammie Denyse, PhD.](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog18662065/Pod_CoverRV_-_Rev_Tammie_Denyse_PhDa5z0j_300x300.jpg)
Tuesday Jul 02, 2024
Getting Loud With Rev. Tammie Denyse, PhD.
Tuesday Jul 02, 2024
Tuesday Jul 02, 2024
In this illuminating episode, Reverend Tammie Denyse, a breast cancer survivor, ordained minister, tireless advocate for Black women's health, and co-founder of Carrie's TOUCH, shares her story of dedicating nearly two decades to addressing the alarming 41% higher mortality rate for Black women with breast cancer compared to white women.
We explore Reverend Tammie's inspiring journey from diagnosis to advocacy and learn about groundbreaking initiatives like Project SOAR (Speaking Our African American Realities). She also discusses the unique challenges Black women face in healthcare, the importance of culturally sensitive support, and how Carrie's TOUCH is working to empower patients through education, advocacy, and research.
![Getting Loud With Tonya Benefield](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog18662065/Pod_CoverRV_-_Tonya_Benefield9tkkq_300x300.jpg)
Thursday Jun 20, 2024
Getting Loud With Tonya Benefield
Thursday Jun 20, 2024
Thursday Jun 20, 2024
In this eye-opening episode, Tonya Benefield shares her challenging journey to diagnosis and treatment. Tonya faced numerous obstacles, including being initially told she was too young for a mammogram, experiencing multiple appointment cancellations and referral issues, and dealing with insensitive medical staff. She highlights the critical support she received from Carrie's TOUCH, which helped her navigate the complex healthcare system.
Tonya also speaks on the emotional and physical toll of her experience, including unexpected surgical outcomes and the lasting impact on her self-image. Finally, Tonya emphasizes the need for more patient advocates, culturally competent care, and ongoing support for cancer patients beyond their initial treatment.
![Getting Loud With Dr. Kasandra](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog18662065/Pod_CoverRV_-_Kasandra_R_White_MDafu5s_300x300.jpg)
Monday Jun 10, 2024
Getting Loud With Dr. Kasandra
Monday Jun 10, 2024
Monday Jun 10, 2024
In this insightful episode, Dr. Kasandra White, an obstetrician-gynecologist, discusses the critical issues surrounding healthcare access and the patient experience, particularly for Black women. She shares her personal and professional perspectives on the systemic challenges within the healthcare system, emphasizing the importance of trauma-informed care and the need for empathy and individualized attention in patient interactions.
Dr. White also highlights the legislative efforts to protect healthcare workers from discrimination and retaliation, and the broader implications for patient care. This episode is a must-listen for anyone interested in understanding and improving the healthcare experience for marginalized communities.
![Getting Loud With Rev. Tawana Angela Davis, PhD](https://pbcdn1.podbean.com/imglogo/ep-logo/pbblog18662065/Tawana_Episode_Artwork_v29spwo_300x300.jpg)
Wednesday May 29, 2024
Getting Loud With Rev. Tawana Angela Davis, PhD
Wednesday May 29, 2024
Wednesday May 29, 2024
Reverend Tawana Angela Davis, PhD shares her eight-year journey battling metastatic HER2-positive breast cancer. Diagnosed in 2016, she underwent extensive treatments, including chemotherapy, surgery, and a clinical trial for immunotherapy, which significantly reduced her cancer. Throughout her journey, she emphasized the importance of community support, self-advocacy, and maintaining faith. She also highlighted the systemic challenges Black women face in healthcare and urged politicians to prioritize equitable access to care. Her story is one of resilience, self-love, and the power of collective support.
![Introducing No Longer Silent](https://pbcdn1.podbean.com/imglogo/image-logo/18662065/Podcast_Artwork8il8v_300x300.png)
Wednesday May 29, 2024
Introducing No Longer Silent
Wednesday May 29, 2024
Wednesday May 29, 2024
Rev. Dr. Tammie Denyse, a 19-year breast cancer "overcomer," shares her powerful story advocating for timely, equitable healthcare access. As a Black woman who defied her 5-year survival odds, she illuminates the harsh realities many patients face due to utilization management barriers imposed by health plans.
Protocols like step therapy prevent cancer patients from accessing medications recommended by their doctors, causing harmful delays and disrupting continuity of care. While clinically proven treatments exist, these access issues disproportionately impact communities of color and the elderly.
Through the "No Longer Silent" campaign, Rev. Dr. Denyse amplifies the voices of real patients navigating the murky waters of the healthcare system. Their harrowing stories expose the dire consequences of delayed care and suboptimal treatment, calling for reform to allow patients and physicians to choose the best treatment plans.